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Support Groups and Agencies

National Support Groups    Local Support and Services    Government Agencies    

CardioCare has provided this list of services to assist our patients in finding all the help and support resources available to them. Please let us know if there are any additional resources that you would like to see included in this list.

Adult Congenital Heart Association
The Adult Congenital Heart Association (ACHA) is a nonprofit organization, which seeks to improve the quality of life and extend the lives of adults with congenital heart defects. Through education, outreach, advocacy and promotion of research, ACHA serves and supports the more than one million adults with congenital heart defects, their families, and the medical community.

American Association of Retired Persons
601 E Street NW
Washington, DC 20049
888-OUR-AARP (888-687-2277)
The site has a Caregiving section in the Family tab covering a wide array of caregiving topics. Although the AARP services are geared toward anyone age 50 or older, information may be of use to all.

CardioSmart / American College of Cardiology
CardioSmart is a patient education site of the American College of Cardiology. Their mission is to engage, inform, and empower patients to better prepare them for participation in their own care. Their site provides accurate, unbiased information in an advertising-free environment.

American Heart Association
The American Heart Association is a national voluntary health agency to help reduce disability and death from cardiovascular diseases and stroke.

CHFpatients.com
A consumer-focused website for patients with congestive heart failure. The website was started by a patient with congestive heart failure seeking a web-based source of information. Finding no resources available, he created CHFpatients.com Inc for patients and their families to share research, networking, information, and communication among others. The site provides information and interactive areas online to help patients with CHF improve and lengthen their lives.

Eldercare Locator
927 15th Street NW, 6th Floor
Washington, DC 20005
800-677-1116
A nationwide database from the U.S. Department of Health and Human Services that gives caregivers access to local area resources that provide care to the elderly.

Family Caregiver Alliance
180 Montgomery Street
Suite 1100
San Francisco, CA 94104
415-434-3388 or 800-445-8106
Family Caregiver Alliance/National Center on Caregiving. A national resource center for families and caregivers, FCA offers a wealth of advice, publications, public policy updates, a Care Navigator for all 50 states, and more - free on their website.

The Red Dress Project: NHLBI
The Red Dress, the centerpiece of The Heart Truth, is a red alert that inspires women to take action to protect their heart health. The primary message driving The Heart Truth campaign is: "Heart Disease Doesn't Care What You Wear - It's the #1 Killer of Women."

The Well Spouse Association
63 West Main Street - Suite H
Freehold, NJ 07728
1-800-838-0879
A nonprofit group formed to provide support and advocacy for the spouses and children of the chronically ill.

WomenHeart: The National Coalition for Women with Heart Disease
818 18th Street, NW
Suite 930
Washington, DC 20006
202-728-7199
WomenHeart is the only patient-led national nonprofit organization that educates and advocates for the 8 million American women living with heart disease.